Tuesday, March 15, 2011

What is P.O.T.S?

P.O.T.S is the abbreviation of Postural Orthostatic Tachycardia Syndrome.

Postural Orthostatic Tachycardia Syndrome is a Autonomic disorder that causes Orthostatic Intolerance. Orthostatic Intolerance is the change in heart rate (tachycardia) from standing to sitting/lying down position. In a normal person the heart rate will increase about 2 beats per minute, while those with P.O.T.S will have an average increase of 30 bpm. It also takes blood flow away from the heart and brain, and supplies it to the lower extremities.

The Symptoms of P.O.T.S can range from mild to severe. Common symptoms include dizziness upon standing, lightheadedness, black outs, headaches, and fainting. It can even cause some people to be almost permanently bedridden. Those suffering with P.O.T.S often have extreme or chronic fatigue, un-refreshing sleep, and very low energy throughout the day.

There is no one known cause for Postural Orthostatic Tachycardia Syndrome. Many believe it can be caused by viral or bacterial infections such as mononucleosis, after a traumatic event or those suffering with Post Traumatic Stress Disorder, and it is also seen in teens during rapid growth periods.

There is also no known cure. Most doctors or specialists prefer to treat patients according to their symptoms rather then the Disorder itself, because the symptoms and severity range so drastically. The most common treatments are any kind of medicine to increase blood pressure, a change of diet to include higher amounts of sodium, and light exercise. The main goal is to provide upper extremities with more blood flow rather then loosing blood flow to the lower extremities.

The two main ways to diagnose P.O.T.S is either with a tilt table or taking a laying down blood pressure and heart rate reading and also a standing heart rate and blood pressure reading and seeing how high the increase is from laying down to standing up.


P.O.T.S is mostly seen in teens, more so females of the menstruating age, after growth spurts or bacteria or viral infections. Usually, the symptoms seem to almost or fully go away within early adulthood.


Postural Orthostatic Tachycardia Syndrome can be severely debilitating and hard to deal with. In my own experiences, I have gotten better over time, and been able to really learn about this disorder and help me to learn more about myself. I have encountered those who don't believe me or think I am "exaggerating" for whatever reasons, so I know first hand how you can feel with this. Many people do not understand the symptoms that go along with this and can deem those suffering with P.O.T.S careless and lazy. My family and I have dealt with friends, neighbors, and have even had to fight the school trying to get me help with this. It can be awful and extremely difficult but keep your head up, there are so many others who also have this, so know you are not alone in this battle. It will get better.

6 comments:

  1. Hi Kristen! Once again it's me, Gracey, the girl who found you on elleandblair.com and said I have POTS too ((: I just figured if I commented on your blog it would be one more chance for to see me and e-mail me at the e-mail address I sent to you in a private message on elleandblair.com . I would REALLY appreciate it you e-mailed me because I want to be able to talk to someone with POTS personally rather than reading your blog ((: (by the way I thinks it's great that you made a blog to create awareness!) so please please please e-mail me back ((:

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  2. Hi Kristen, I was checking out your blog here, and was hoping I could email you a blog post suggestion. Can I

    email you? mine is in my profile, or for convenience, following:
    jillian [at] dragonsearch[dot]net.

    Thanks! -- Jillian

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  3. This is a great POTS blog. You write beautifully. I would not have known you are still school-aged if you hadn't mentioned it.

    I am older, but my timeline of the onset of my POTS symptoms is similar to yours. I became sick in January 2010 and after lots of incorrect diagnoses (cancer, "it's all in your head," croup, etc.), I was finally diagnosed by myself with POTS in September 2010 (confirmed by top NYC hospital and my docs who consulted with Vanderbuilt by phone).

    You took the words out of my mouth when you say this has really changed you for the better and changed how you think of other people. It's not fun to have POTS, but it does open our eyes to what is really important in life. I no longer waster time and energy on stupid things like being mad at someone who cut me off on the parkway or that my cell phone went through the washing machine. I feel like, after POTS, I don't let the small stuff get to me anymore, so that gives me more time to focus on what matters to me.

    Best of luck to you! Check out my POTS blog if you get the chance : www.potsgrrl.blogspot.com

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  4. Jillian- I emailed you back. I would love any input you have or ideas for a blog post, just let me know! :)

    Potsgrrl- Thank you so much, you're so sweet! I feel like having this has made me wiser than my years. It's so frustrating that it can really put you down. I feel like looking to the positives of this has really helped me. God put this in our lives for a reason and it really does make you stronger and not sweat the small stuff.
    I'm gonna stop by your blog now and subscribe! :)
    Thanks so much! Best of luck to you as well!

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  5. I see you haven't posted in awhile. I do hope you continue to blog :) I love connecting with people who have POTS.

    I hope that you are having more good days than bad

    Take care
    xoxo

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  6. Hi, Erin!

    Thanks for your comment! I've been pretty busy with school, but Im hoping summer will free me up to blog more! If you want to see my person blog on POTS its blamingtheinvisibleman.blogspot.com
    I post more so on there about how I've been doing, rather than just information on it, like this website is for.

    Thank you and I hope all is going great for you as well.
    xo Kristen

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